• Living with Graves

    A year and a half ago, my friends sent me to a local emergency ward in Singapore when I moved in and out of delirium in the middle of dinner. I had been unwell for a long time, but there had been no suitable diagnosis or treatment. I lost nearly 20 kilograms, had the shakes, became insomniac, and most of all, emotionally and mentally unstable. Once diagnosed, it isn't a terribly awful disease; but the number of adjustments one has to make is astounding. Friends and loved ones too, struggle with dealing with the external impact of your disease, and will have to do so for a very long time.

    To say it can have a dramatic effect on your life may not be an understatement. Nearly every Graves' patient I know personally has experienced one or all of the above: unplanned career changes, closure or reorganization of business enterprises and any other financial responsibilities, breakdowns of relationships including marriages, and the list doesn't stop there. Some of your partners or friends will think it is not a big deal and that you are overreacting: after all, it's just that a tiny butterfly-shaped gland near your throat has elected to produce hormones at a different rate, right?

    It could not be more wrong.

    That tiny butterfly-shaped gland near your throat is also inscrutable, and controls many aspects of your life and health that you take for granted. One of the key things it affects is your mood, if untreated or treated inadequately. If you've always been cheerful, optimistic and bubbly, imagine becoming a different person for hours with no warning whatsoever; breaking down crying when your bus doesn't arrive, or when your toast is burnt. If you've always been confident and dominant, imagine becoming daunted by small tasks you do routinely - and being confused as hell about it. If you've always had a superb memory to the point you've never had to write anything down to remember them - imagine forgetting, every single time, the door code to get into your office. Every time you go to the bathroom you get locked out from work because your brain just isn't keeping pace with your body.

    Scariest of all: nothing else seems to matter. The business you've built for years. The career you've devoted your life to. The partner you've made plans for life with. It's so necessary to walk away from all of that, when you aren't yourself. It's tempting to think about leaving everything and everyone because nothing's working anymore and you want no part of it. It's easier to quit. Which is also weird, especially if you've never been a quitter.

    I tried, and still try, to lead a normal life. I take my meds everyday, but am constantly thinking about what more I can do. Should I drink radioactive iodine? Remove my thyroid gland completely? I don't particularly want to do either especially since neither of them have a sure shot or even a good shot at curing me, and may potentially work out even worse. I want to eat my meds daily and eventually come to a point when I don't need them anymore. Most days, a year and a half on, I'm back to being myself - by that meaning a completely different person from when I got diagnosed. A different person from the one that made bad decisions because I did not know the extent of my disease or what it does to me, when I did not know I had the disease at all. Now that I know how it affects my cognitive processes, my emotional lability, my physical body when the symptoms return when in remission - I try not to notice. Most days, I succeed. Yet it never feels like it's enough.

    We still haven't gotten it right. The meds work and then they don't. My body, through no input from me, suddenly decides it loves making my heart jump out of my chest when all I'm doing is sitting in a car. My mind decides it wants to react in entirely unwarranted ways: I'm the life of a party one mind and the next moment I can't even hold a conversation with anyone.

    I'm seeking all the best medical help I can get but it's still an incurable disease that affects everyone differently and in different ways at every stage in your life. I don't know if I'll ever be done: all I can do is manage my expectations, and other people's. I know my limits: if I can't work, socialize or be normal, I have to make sure people know it isn't me, it's just this dumb disease. Sometimes I don't even know who I am or what's happening. I've come close enough to get to a point where my levels are supposed to be normal, normal enough to get off the meds completely to see what happens next. But even before we can try that, I'm relapsing - like a damned yo yo - and I have no idea what will happen next. It's a dumb disease.

    Just some dumb disease I'll have forever.

  • Why I'm Hosting Culture Kitchen

    This is a project which has been on my mind for some time now. We've been planning it for a while. A part of this is a response to a worrying trend of anti-foreigner sentiment (c.f. the responses to a drive to raise funds for victims of last year's Downtown Line accident: here and here).

    The other part — which I believe to be more important — is the need for us as a nation and as a society to come around to the idea that we are not alone in this. Immigration is a touchy issue everywhere. How we choose to deal with this now will be something which has repercussions in the future. Evidently there are many schools of thought on this.

    Personally, I believe the day people stop wanting to come here to live or work will be the day we should worry. That would only happen when we become verifiably a land with no opportunities whatsoever, which cannot afford our people, and our guests and newcomers, a better life.

    When I was in university, my closest friends were in the Indian/ Nepali/ Pakistani (i.e. desi) contingent. Homesick, they sought out food which reminded them of home. Usman Restaurant at 238 Serangoon Road, near Mustafa/Desker Road, was one such place. It opened late, and most nights we would walk there from school or from the SMU hostel to tuck into comforting, always hot naan, roti, dal fry, haleem and other delicious Pakistani/North Indian dishes.

    Anil, my university buddy from Kathmandu, and I were big fans: pretty soon, we got to that point of patronage where we had our own tab, and the workers and owner of the restaurant were on our speed dial and Facebook. We made friends.

    When I went abroad for about five years, every time I returned I had to come back here. I started bringing other people there: my parents, other family members, family friends. One incident which stood out for me was in how I had brought a younger friend from China to Usman. She had barely eaten Indian food in her life, and now she was in Singapore, about to start at another local university. I saw her go from trepidation (from not knowing anything about the food nor what to order), to familiarity. It turned out that while I was away, she would return religiously with other friends from China, and also from Singapore, and she would order the food that I had ordered for her because she loved it. Eventually she began to have friends from India, too, and this was something that she now had in common with them: she really loved the cheese naan and the chicken kadai there.

    Something struck me, and has stayed there ever since. When I read about Conflict Kitchen, something clicked. I realized we could synthesize — and borrow — some of the food and art as dialogue aspects, and localize it for our own context.

    There were plenty of challenges. What came up often was: how do you know you're not already preaching to the choir? The bleeding heart liberal wing, the English-speaking, the people like us, already believe in migrant rights and all of those things. What good would it do to tell these people again about diversity and inclusivity, when they already believe in them too?

    The second challenge was place. We wanted to do it in a public place, and Little India was top on my list. But this is Singapore, and there are a thousand permits… so that was off the table.

    Eventually we came up with a first Culture Kitchen which is, I think, simple in its objectives and easy to understand. The main premise is, quite simply, come have dinner with our migrant workers. We sold out tickets in two and a half days. We went to Little India last Sunday, and distributed free dinner invitations. (Singaporeans/expats/residents pay $5.)

    Dinner invitations for migrant workers.

    The response was enthusiastic, and we were fully subscribed. I am delighted to announce that we have an pretty balanced mix of Singaporeans/expats/residents and migrant workers.

    What's the objective?

    I'm doing this because I'd like to help facilitate more of those moments. Moments like when a Singaporean-Chinese and a Nepali student like myself and Anil, are able to make great, lasting friendships with people from various parts of Pakistan who have chosen to make this place their home, and with each other. Moments like when the mainland Chinese friend is able to glean a closer understanding of a completely foreign culture, only by way of her time here in Singapore. All of us have just this in common: we live here. Some of us, like me, were born and brought up here. Others come for a short while for study or work. Others will do that and choose to make this place home, when the time comes. I don't think we need to split any hairs over who is a ‘true blue Singaporean' and who isn't: I truly believe that.

    Bangladeshi workers in Little India signing up to Culture Kitchen.

    I may be idealistic in that respect. Some of the undercurrents of Singapore politics disappoints me greatly. I believe that we can be welcoming of foreigners, and I also believe that we should be able to have mature political dialogue over our immigration policies. It doesn't have to be a zero sum game. A few days ago I posted that I disliked the term, "Singapore for Singaporeans". I think that if you were to replace either term with any other race, nationality, religion — it would be unacceptable. It is, to me, fascist, loaded, designed to exclude. This is not the Singapore I want. Immediately I received a torrent of online feedback, wanting to know if I would be happier with being a second class citizen in my own country. Again, this is not a zero sum game.

    What would be detrimental is if we were to continue tolerating the racist and xenophobic sentiments and never call them out for fear of being termed a traitor (or an SPG, as I have been called many times in this context). What is already detrimental is agitations of the vocal minority which wants to see no foreigners here at all, or only the ‘right kinds' of foreigners. What is already detrimental is the unfortunate lack of gumption in the political establishment, which seems too bothered by the vocal minority, in dealing with the push back not by doubling down on better policy, but by apparently taking an iron-fisted approach. Closing the doors every time someone stages a protest is not the way forward.

    What is the way forward? I don't have a specific answer.

    I can, however, build communities and movements. This is one of the things I know I can do well, and I want to lend my technological and organisational skills to building a movement which will stand up for a Singapore which includes. The Singapore we want to see. While I will continue to call out the xenophobes every time they emerge from the hills, I will also spend twice as much time on helping to create a counter movement which is positive in nature. I don't have an ROI, I don't have an end goal, I just want to bring people together.

    The first Culture Kitchen will feature biryani. You will realize from the name itself that the event is titled Biryani/Beriani, for good reason. One dish, many stories, many geographical and cultural interpretations. But still a tasty dish which everybody can get behind. There will be dum biryani from Pakistan, and there will be Malay-style chicken briyani. All of it is halal. There will be peas pulao, for the vegetarians among us. I'm not sure what can happen over biryani, but I think if I don't try, I'll never know.

    So let's rock up on Sunday, keep calm and eat a ton of biryani, and make new friends. Thanks for the overwhelming support.

  • 74 Weeks Later

    1. Once or twice in your life, something, or someone, gets under your skin and stays there. Most of the time it's because you have let them. It does not need to be tragic; it can even be, at times, up-lifting. All of the time it changes your life in some big, unalterable way. Then you learn to deal.

      Seventy four weeks ago (I only know this because Instagram tells me so) I made a decision about how I wanted to live the next twenty years of my life, and I'm learning everyday that breaking up costs more, the older you get.

      ecause at 22, you don't really know what kind of life you want for yourself. The best you can do is learn from what you run away from.

    2. Running away used to be my only currency for dealing. These days I over-compensate. Twelve months ago I was in Helsinki going on San Francisco, running away from life and lost love.

      I met a girl at a bar after a BDSM street party, and she robbed me.

      Only in San Francisco.

    3. I was in court today.

      Say what you will about the system and its shortcomings, but nowhere else in the world do you get an efficient, fast-moving court system which settles commercial matters: after office hours. So the GDP won't take a hit, I suppose.

      74 weeks ago, in running away I also ran away from the filing of company papers.

      So I now owe the Singapore government $$$.

    4. Some older, wiser people have this to say:

    • fuck it
    • date widely
    • have as much fun as you can
    • fuck everything, really.

    I'm coming around to the point of view that they are right.

    1. Life is funny and always, always takes me on these amazing, unexpected journeys.
  • Over and Over

    1. Some days ago, a boy I used to date as a wee teenager (yes, a boy!) reached out to me on Facebook. It's funny where we are now: he's now a hotshot international banker, I'm now an international vagrant (I don't really know how else to describe myself), instead of the awkward, school-uniformed boy and girl we once were. I found this episode especially funny because (1) I used to date boys! Which amuses me (2) exactly 14 years have passed since we used to 'go out'; we were 14 when we started going out. These days I am more acutely aware of how much older I am getting, and the fact that Class 95 now plays the songs I grew up with when they play "the classics" doesn't make it any better. In a couple of days we'll probably meet for steak and wine with some mutual friends. He's found some photos of us, circa 1999, and thinks it will be funny to laugh at our younger, hotter selves.
      It will.

    2. Everyone's getting married. Well, not everyone, but lots of people are. In a couple of weeks my best friend D will walk down the aisle with a really lovely boy, and I will try not to burst out of the tiny green dress I am supposed to wear. The one I still haven't bought. Everything changes, but nothing does — she's still more mature, more put together, more likely to worry about her friend who has been all over the place since we met as adolescents. I've read a lot about what 'growing up' is supposed to mean — the only consistent point everyone's made is, the older you get the less of a flying fuck you give, and you just have your key group of friends who stick by you no matter what.
      At the time of writing, D's just texted to slightly threaten emphasize the urgent need for me to do something about my hair so that it isn't in my face in all of her wedding photos, which I actually think was a scenario we must have discussed ten years ago. "YOUR HAIR AH." My hair.
      My hair does get in the way.

    3. I just downloaded one of those time machine apps which scour your social media networks to show you what you were up to a year, two years, three years ago. It tells me I was staring at a giant fake swan in Hungary, with these Hungarian and Czech developers. We were building something in a house by a lake. We may have gotten a slight case of cabin fever. We went swimming, paddling, and we found a giant swan which was also a boat. We christened her Gloria.

    Gloria, Swan


    The exact circumstances which got me to this very moment are meandering, long-winded ones. It began in south India, in an autorickshaw, and then to Kuala Lumpur, Bombay, and then to hospitals in Singapore, then to northern Europe, then to KL, Singapore, and then finally to Zamárdi and to this swan we called Gloria.
    They were fun times. They taught me that never again should I allow myself to be photographed in a half-wet t-shirt, anywhere in the world.

    1. I am acutely aware of just how much change there's been in my life in the past 70+ weeks. I've switched entire cities and countries. I haven't been able to keep myself grounded, in the physical and mental and personal and professional sense. Beyond the appearances of someone who's 'got it figured out', I'm really grappling with the basic questions I never did have to answer before. Where do I want to live? What do I want to achieve? How should I get there?
      For the most part, I am 'home' now. The home that I left was the city I was born and brought up in; the home that I came home to late last year, is the one I prefer. It is also the city I now pay rent in. Last week I went up onstage at FORK4 and gave a little talk about my side projects. I met all these incredible people doing great projects, like Dream Syntax, State of Buildings, Another Beautiful Story, and more. A few days later, I went to Pizza X II, the second instalment of a back alley artisan party, with great food and drinks (Spit roast! Karelian pastries! Artisan rum and new growth wines!) and some of the best people in this island.
      Then there's stuff like this, and this. It matters a great deal to me to be amongst a people that want to do things. Make something better. It keeps me going.
      At times I wonder if I made a mistake when I made the call to stay, but most of the time I am surer than ever that I made the right decision to come home. Because I just haven't been home for a while and I needed to be.

    2. I'm writing. I'm dating. One of those is coming along better than the other. At least writing is free. When it comes to dating, and the occasionally terrible, mostly funny in hindsight moments I've had in that field, I am reminded of how one of the smartest people who ever lived once defined insanity to be doing the same thing over and over again and expecting different results. Without going into too much detail: I am done with that.
      I am writing a whole lot more, trying to follow some kind of writerly routine. It is working.
      When I opened Reminders.app, an app I never use, I found the one Reminder I had on it: remember to tell doc about my memory loss problem. I never remembered to. Something about it captured how weird and heartbreaking that entire period of my life was. The fear of not knowing what was happening to my body or to my mind. The inability to control anything about where my life was going. The heartbreak of losing everything I had. Everything at once. The seeming insanity of having chosen to lose those things of my own accord, but nothing really was.
      Life got better, but it will never be the same again. I don't want it to, but I don't want to lose it all again, again. I don't think I will. That would be insane.